Helping you easily evaluate how Hereditary Angioedema (HAE) is impacting your daily life

It is understandable to focus on HAE attacks, but maybe it is time to also focus on life between them. This website is designed to help you recognize this impact, and offers you tools to help you communicate your needs with your healthcare team.

You are not alone:

Click here to view patients' reflections on how HAE affects their daily life.


Understand the full impact of HAE on your life

You may have experienced the physical symptoms of the condition. But what’s less obvious is the way it can impact all aspects of your day‑to‑day life.

Reflection Guide


Consider your full potential

People living with HAE should be empowered to take control of their future, and not allow HAE to control them. A key step to reaching your full potential is to truly understand how HAE is impacting your daily life.

Self‑Assessment Questionnaire


Create a care plan

Your care plan development and/or review will give you confidence in your treatment strategy, so you can focus on living well with HAE.

myHAE Care Plan


Track your progress

myHAE is an app that will help improve communication around disease burden, allowing you to track most aspects of your HAE.

myHAE App

Remember, YOU are an important member of your healthcare team and your input is critical to achieve the best outcome possible for your daily living.

If you think you have HAE symptoms and have not been diagnosed yet, these resources can help you start your care plan journey.