Organizations
HAE Canada
HAE Canada is a patient group formed in 2010 to work with physicians, nurses, and other healthcare-related professionals to create a better life for HAE patients living in Canada. All HAE patients in Canada are encouraged to join this group. There is no membership fee and you will find many helpful resources.
For more information, visit www.haecanada.org.
Angio-oedème héréditaire du Québec (AOHQ)
The purpose of Angio-oedème héréditaire du Québec is to contribute to improving the health and quality of life of people with HAE. In addition to raising public awareness of this condition, the organization’s mission is to train medical staff so that they can make a correct diagnosis, and thus better direct patients to specialists.
For further education, visit www.aohq.ca or call toll-free 1-855-561-4563.
Canadian Hereditary Angioedema Network (CHAEN)
If you are looking for a CHAEN physician and/or clinic, please visit www.chaen-rcah.ca/guidelines.
HAE International (HAEi)
HAEi is the international patient organization for C1 inhibitor deficiencies.
Find support and educational information for patients at www.haei.org.
Canadian Association of Genetic Counsellors (CAGC)
If you become pregnant, it is important to be closely monitored by an HAE expert along with all the other healthcare professionals involved in your care. Genetic counsellors provide individuals and families with information on the nature, inheritance, and implications of genetic disorders to help them make informed medical and personal decisions.
To find a Genetics Clinic near you, click here.